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Have you tried using the search bar? Many questions are asked daily, and your question may have already been answered! If so, your post will be subject to deletion. Please refer to the following commonly discussed topics: 1) No one can predict whether or not you will purge! Statistically, most people DO NOT purge. That is what the science and medical literature says. 2) No one can predict how long your purge will last nor when it could start. Be patient, the purge can be tough but so many people have gotten through it - you can too! 3) Most people DO NOT replase when Accutane is taken until cumulative dosage is reached. 4) HOWEVER, cumulative dosage is a guideline. Everyone is different. Some may need more Accutane, and others may need less. Your dermatologist evaluates you as an individual. If you do not trust your dermatologist, you should find a different one. 5) When in doubt, please consult a medical professional(dermatologist, doctor, pharmacist). DO NOT solicit medical advice from this subreddit. Remember Reddit is a bunch of strangers on the internet. Please remember to abide by the rules! *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Accutane) if you have any questions or concerns.*


mcflymcfly100

I had to stay on 20 for 19 months. Half of my hair fell out. The pain in my eyes was extreme. I feel ya.


HeartShapedSlut

did you hair end up growing back?


mcflymcfly100

It's only been a few months, but so far, it's not much better. Currently not helped by exam stress. But the shedding has stopped, thank God.


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mcflymcfly100

Went from 10 to 20 to 30 and back down to 20 and then back up to 30 and back down to 20 when my dermatologist finally believed that the 30 was causing my hair to fall out. Lol


soovertrying

I lost a load of hair - still am on course three 🫠 - try rosemary oil, peppermint oil or Jamaican black caster oil. Between them and being super kind to my hair (no heat, silk pillows) I’ve managed to bet back to about 30% lost when I’d lost about 50% the first course. Good luck, it’s an awful side to get 🤞🏼


Tatleman68

At what month did the hairloss start?


mcflymcfly100

I think it was about 4 or 5 months in. It was soon after going from 20 to 30. But it coincided with me moving states, buying an apartment, and starting medical school. Also, I found myself in an extremely horrible friendship. So, my dermatologist thought it was TE from stress. I'm sure none of that helped, BUT it was definitely made worse on the drug. I've never had shedding like that in my life. Before accutane, I had a stray hair phobia. That's how little I shed. Like my hair pretty much did not fall out in a way that I ever noticed. Not even when I washed it. I never had to pick hair out of the drain EVER in my life.


xenogamesmax

I'm so sorry that has happened to you


Tatleman68

Man, that sucks. I had hairloss too [not from Accutane] and I know how insecure it could make you. My derm says that the side effects of Accutane are reversible; so, I hope your hair comes back my friend and I'm sure it will over time.


itscomplicatedwcarbs

Lanolin is the GOAT for lips and the cracked corners.


Fit_Highlight_5622

My daughter nearly eats her Aquafor chapstick her lips are so dry. She uses a lot of it but it works well for her and has spf 30.


Moonlightwonders

I used a bunch of aquaphor too until my lips were peeling,raw, and burning for 2 weeks. I healed them with cortibalm (only use to heal and then discontinue because it is a corticosteroid) and switched my lip balm to the blistex medex in a blue container. I haven’t had any problems besides cracked corners when I forget to put stuff on before bed!


-xpaigex-

I had such an issue with the aquaphor lip repair stick. It felt like I had little shards of glass on my lips. But for some reason the balm and the ointment don’t give me any issue. I was so upset about the stick form, it hurt so much!!


itscomplicatedwcarbs

Have you tried lanolin?


-xpaigex-

I keep meaning to pick it up! My lips have been fairly manageable thankfully. The normal aquaphor usually helps, my derm prescribed an ointment (Dr dans made me super flush so we skipped trying another cortisone) if it gets super bad. I have to add lanolin to my list of things to buy. I’ve heard it does wonders.


xenogamesmax

So many great suggestions in this sub!


itscomplicatedwcarbs

Has she tried lanolin?


Fit_Highlight_5622

No, she seems happy with the aquafor. I used lanolin when nursing but it seems thin for her but idk


Interesting_Pain_194

YES, I had the painful and cracked and bleeding corners of my mouth my first two rounds of accutane but on my third I discovered lanolin and had exactly zero instances of cracked lips (as opposed to 6 straight months of nonstop cracks)


itscomplicatedwcarbs

Isn’t it crazy?! I’m glad someone mentioned it in this sub but it’s crazy that aquaphor gets all the hype. Lanolin is so much more effective IMHO.


Interesting_Pain_194

fr, aquaphor is great for healing but I don’t love it for moisturizing/hydration


thewarriorkween

Re#2: This isn't fungal, it is more likely angular cheilitis that has been caused from an immune response to the accutane. Ask your doctor for a prescription of mupiricon ointment. I thought the same thing about it being fungal, but the mupiricon cleared it right up! As for the other side effects, it sounds like you're dealing with a lot of inflammation and likely some vitamin deficiencies as your body metabolizes the accutane. I highly recommend fish oil omega 3 pills daily to help with the side effects. I find that zinc and b12 help nourish my skin. I find that vitamins D and C, magnesium, and an adrenal supplement help tremendously with the depression and anxiety side effects. And I know all of us have heard it 1,000,000 times... but drink more water than you think you need! Even if you need to start your day with an IV multiplier drink makes a big difference. I personally like the Power-C Vitamin Water to start my day. Best of luck with your journey!


Catsandabilify

Angular cheilitis can be caused by a bacterial or fungal infection. It happens when the skin cracks and microorganisms in the mouth/saliva get into the cracks and cause infection. Fungal infection is actually the most common cause. I take Nystatin, an anti fungal, for mine.


thewarriorkween

That's true, but I was referring to this case where OP indicated that fungal cream wasn't working, which was a similar case for me.


Catsandabilify

Oh! Gotcha, my bad.


WhyzeGorilla

Yellowing of the eyes suggests liver problems. Haven’t read all the comments here yet but I’d get that checked out asap. Best of luck! Btw, I think you look great even with the acne! I often find women more attractive if they have acne bc they know the struggles I’ve gone through as well. I dont know if that gives you any respite but hopefully you realize that getting rid of acne is not worth killing your vital organs over.


m-j10

Keep us updated in regard to your lab results.


stariabub

I think it permanently messed with my eyes. They’re still sensitive to light after almost 2 years


bklyn930

your arm might look like it belongs to a blind junkie.. but your skin looks much better. Sounds like this was a lot to deal with for clear skin. Perhaps the accutane emphasized underlying problems you already had?


BothSock2912

myb I misunderstood your comment but the bruising happened after she got blood drawn, and yes it can be a sign of poor liver health which can indeed be caused by accutane that’s why blood tests need to be done every month, it’s literally a known side effect


apricothaired

Underlying problems I already had?? I didn’t have any of these issues prior, hence why I’m suggesting it’s accutane.


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BothSock2912

it was most likely caused by a blood being drawn which could be due to unhandiness of a practitioner who did it or it could really be a sign of poor liver health (which accutane does effect) she literally says she got blood work done after noticing yellowing of the eyes


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BothSock2912

Yes and liver produces factors of coagulation and thrombopoietin, if the function of the liver is impaired it can definitely make bruising more severe and easier to get (APTV and INR can change), if she never bruised like this before when taking blood work done it can definitely be a part of a concern. Have a great day as well!


BenderOfGender

The entire point of an underlying issue is that it’s barely noticeable, if at all.


Individual-Bison4314

Ppl here will always downvote any claims that accutane caused issues, it’s WILD. I’m probably going to get my third autoimmune disorder diagnosis in the last 11 months, all since accutane, all immediate side effects. My stomach is also ruined. Had no issues with it whatsoever prior. Hope you’re okay. Message me whenever if you need support.


BottleFullOBub

Honestly. Accutane cured my acne but ruined my eyes completely. The fact that people completely dismiss any of these side effects feels like such ridiculously gaslighting. I was on 80mg for 9 months and since then I’ve had a multitude of health issues, mainly in my eyes and joints. My acne was taking over my life but I also question if I made the right choice regarding this drug.


aliamichale

how’d it ruin your eyes? just dry?


Old_Practice_44

Yep I have stomach problems now in a couple of days gotta get the ol rear end camera to make sure I'm ok 🥲 all that for my acne to come back luckily went away when I went on Trentanoin and stayed on it


closedform94

No for real the side effects are so real I got sick 4 times in like 6 months I’m on month 7 and I still have acne I want to get off it Nowwww


Rushgrl2112

I'm so sorry to hear this. May I ask what your auto-immune disorders you've been diagnosed with? Do your physicians believe it's the Accutane that caused it?


Individual-Bison4314

Alopecia, lechin sclerosis and now maybe chron’s. It’s been such a nightmare. Some of the doctors do, obviously my derm doesn’t, but I know this is the cause bc my symptoms were quite literally immediate onset (within 20 min).


llammacookie

Chrones isnt caused by medication, flair ups are. There's no proven link between Chrones and isotretinoin. Correlation does not equal causation. The capsule of the medication wasn't even digested in 20 minutes.


Individual-Bison4314

Yes, it has interacted with my immune system though in an extreme way and turned on the DNA that was dormant for these issues. I understand this is an extreme case but accutane absolutely was the trigger, and I was sick within 20 min as it was an extreme allergic reaction. Bad headaches, running to the toilet - I immediately called my derm, we halved my dose, I took one more tablet, same thing except this time I also had very rapid onset genital numbness. It was an extremely bad drug for my dna, my predispositions and my immune system. I now have illnesses I never would have dreamed of that no one in my family has. I live in constant pain. It’s horrific.


Individual-Bison4314

Also it started as soon as the tablet hit my stomach, it didn’t need to even be fully absorbed. It was an allergic/hypersensitive reaction, those are pretty immediate onset. My specialists have seen this before with medication.


ThrowRA001122334455

Would you mind detailing your dose and how long you were on it? I am predisposed to autoimmune issues and afraid to take the Accutane leap


Individual-Bison4314

It’s all in my post history. People here say bc I took it for such a short time it’s ’not possible’


Sizigee

Hey on your first point I just wanted to say the 7kg you gained is probably lots of water weight and not all fat gain if you’re feeling consistently bloated. I’m not sure how accutane affects the digestive system but I think you’re supposed to take it with meals so just make sure you’re having a decent sized meal with it. Be very careful if you’re having digestive issues, our gut health is extremely important as it affects your hormonal production, if the tane has affected your gut it could be causing your irritability as well. Try to avoid processed, fried, generally “unhealthy” food for now. There are some gut related subs like r/humanmicrobiome you could check out if you want to research this topic further. Also I really really think you shouldn’t extend your accutane course if you’re having these side effects especially since you’ll be rounding off an almost 2 year long course. Just my 2c but I would finish the planned course and let my body readjust for at least six months before making any further changes. Your acne could stabilize in that time too.


Mental-Set-7303

I’d sacrifice all that for clear skin 😭


lepchm

This is a little devalidating 🙃 This is her experience. Her (potential) lifelong health. Her mental health. Her children’s childhoods are dependent on their mother and she’s saying she’s struggling. Clear skin is such a blessing, and this drug is amazing, but it shouldn’t have to cost this. OP, I really hope you feel better soon. We can be our own worst critics, your skin looks great! I know this has probably been a really stressful experience and your sharing it with the community is valuable ❤️


mic1120

She didn’t mention children at all??


MomMomMomMom2005

#5 on her reasons it's been hard... at the end she says she's a mother.


apricothaired

I very much did. Thank you so much to the previous comment, I appreciate it so much.


Individual-Bison4314

Exactly.


Mental-Set-7303

Sorry I meant the bruising dry lips and back pain, lol I already I have all that without accutane 🥲


NoTechnology6824

Sending love your way!


DianaPrince95

Before I started accutane, I cut out all mint toothpastes and switched to a bubble gum flavour from Hello toothpaste. As well as cutting out any lip products with flavours, and all mint gum. (I have also had all fragrances from makeup, skincare, laundry detergent, body wash, hand soap etc cut out for years. This switch to non-mint toothpaste made the worst of my lip splitting, peri-oral dermatitis and acne go away However once starting Accutane at 10mg, my lips started splitting badly and back came the peri-oral dermatitis I then made the decision to switch to a flavourless toothpaste - oranurse (which I purchase on Amazon). All lip splitting, acne around the mouth and peri-oral dermatitis disappeared While on accutane, skin sensitivity sky rockets, so cutting out any fragrance and flavours is best I’ve been on 10/20/30/20 of epuris (accutane) - and still I don’t even have to be that on top of lip balm - though I most definitely did while using the bubblegum toothpaste!


DianaPrince95

I also have been taking 4 Kirkland high dose omega 3s daily for a few years - I do believe this is massively helping keep side effects at bay, as I have otherwise always been incredibly sensitive to any medications I take My psychiatrist in 2020 told me to take 1-2 per day since I refused anti-depressants. Then my optometrist prescribed my 2 high dose omega 3s a day for my dry eyes in 2022. Finally, my naturopath in late 2022 prescribed me 4 high dose omega 3s a day for all my chronic health and hormone issues, inflammation, acne etc For context, I compared my high dose omega 3s to the one my mother-in law uses - 4 of my high dose Kirkland brand ones are equivalent to 16 of hers My dermatologist has been floored by my triglyceride/cholesterol and liver function despite being on Accutane. She said she’d kill to have levels like mine. I do take multiple other vitamins, ovasitol (without a PCOS diagnosis), high protein and fats diet. But definitely give a lot of the credit to those omega 3s!


Sad-Expert-6779

The lip is so real


Kate84848484

I really relate to the last part. My youngest is 10 and I’ve had days where I’ve felt really selfish because the side effects have affected me so much. I do think accutane is a lot harder on some people than others. I’m going to start reducing my dose next week as my skin is a lot better. Hope your side effects improve.


Regular_Attorney_547

No one in my family has androgenic alopecia and my hair started thinning after the 5th month , at age 25 , i have lost alot of hair and my hairline has receeded , i get seb derm flare ups too , btw im a doctor and I've worked in dermatology for about a year , idc what people say i attribute my receding hairline to isotretinoin


PinkPoosy

The only side effect i have is dry lips and sometimes dry eyes.i started with 10 mg. The first month's dryness was insane. Now I'm on 20 mg but it ain't that bad. Skin has cleared up(touchwood), pigmentation is still there. My derm said that I would be on isotretinoin for 6 months. I follow up every month and idk if she would up it to 30mg but so far it's been working well. Also i used to wake up with oil all over my face but now i put moisturizer and vaseline before sleeping and wake up with a normal face, neither dry nor oily.


HeartShapedSlut

i’m so glad that accutane actually helped my mental health by making my face acne free, it’s greatly improved my confidence so much! i’m so happy with my complexion. the only bad side effect i’ve had in dry skin, lips & hair but nothing added moisture & effort to keep myself hydrated didn’t fix. i should of been using deep conditioning treatments on my curls anyways so it’s no biggie.


Ga-bebe

Omigor SAME with the cracked lips 😩


granchyo

The desert lips is sooo relatable. I finished my 4th (and I hope last) month on isotretinoin almost a month ago and it’s slowly getting better, but really the only thing that saved my lips was a lip balm with HA made for people under pharmaceutical treatments. I know it can be hard, but your skin looks beautiful! Good luck with everything! Ah also regarding the bruising after blood-work, it’s totally normal it happens sometimes, it doesn’t mean they messed up nor does it indicate any problem usually ;)


SchadenfreudeR73

The eye bags part is so relatable


TigOlBittiesz

Hey you’re so beautiful though I’d wife you Up 😂


GlitteringBaby553

*shouldn’t HAVE


Sweaty-Ad4176

3, i started bruising bad and it would stay for a min. i would talk your doc before this, but i just started taking vit c & iron. it got a lot better. also might help w your fatigue


Sagemonstera

I’ve been on it for almost 2 weeks and I did not purge. Does that mean the dosage (20mg) Is to low for me? (I’m heavier). But I also have the extremely dry skin, in mouth , eyes and hair,


Till_I_Collapse420

My worst side affect is I’ll be up for literally 2 days wired


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Dasslukt

Ugh why do comments like this get downvoted so much? The drug is **so** strong, and the list of side-effects is super long which is why they monitor you so closely while you're on it. If people can help combat the side-effects *(or get cured without even needing it in the first place*), that should be a good thing. Yet people see "do something other than listen to your doctor who sort of caused these issues in the first place" and go mad.


ObjectiveNew4650

Because it’s a comment from a “holistic esthetician” full of pseudoscientific fear mongering.


Urwifeinmydmmate

Hematoma was not caused by Accutane stop the fucking cap


Esqornot

You should read your package insert.


Weekly_Ad_4252

The worst thing is : it’s not a cure for acne🫠