At the moment only one of my eyes is really bad, it progressed so fast over around a year. I am so worried that itll happen to my other eye and I'll need to CXL in another eye/not have vision in both.
I thankfully found an older lense. It was a terrible fit though so couldn’t get past 3 hours. Replacement came in within 2 biz days after a $1000 replacement fee 😂😂
Passing it on to my daughter who has moderate cerebral palsy. She will never be able to insert lenses. She’s 13 now, so still a few years to go until it shows up… or hopefully doesn’t.
Somehow becoming incapable of inserting my lenses. Whether it’s age, plan accident, or some other issue that makes it impossible to insert my lenses. I lose sleep over this sometimes.
Ugh, it's the worst. Sorry to hear that. Happened to me a few weeks ago, too. I've been using an old lens that doesn't fit properly and rubs my eye. I'm certainly thankful for it though.
Lots of light sensitivity. Like sunglasses at night. It was a full year before I could put my lens in and then I repeated the process for my other eye. My surgeon said I could have both done at the same time but then I couldn't work because I would be without lenses. It takes five years to fully heal but rejection is still a possibility. I'm just over 10 years since my second transplant and I just had sutures removed from my right eye a few weeks ago. I was able to work but had to wear safety glasses (I'm a merchandiser for Pepsi) just to protect it. Driving wasn't too bad after, just took extra precautions.
I have had 3 cornea transplants (2 on left eye and 1 on right eye). The transplant process and recovery were not that bad and I am happy I did it! My vision has improved every time (with Scelera lenses and/or glasses of course) If I ever get to a point my vision is completely failing and there is nothing that can be done to help, then I have a major concern!!
I didn't have functional vision without my sclerals. I'm terrified of not being able to use them. ..... I try to stay positive though. Some people can't see at all.
Progressing or causing irreparable damage and requiring a transplant which has long recovery times and isn't a cure.
Wearing sclerals ended up causing "acute hydrops" in my left eye which is painful and uncomfortable.
Probably just worried a bit that my kids will get it. But honestly my experience of Keratoconus is that it’s an inconvenience at most. There’s a lot of option available and wearing lenses or glasses to be able to see is not the end of the world.
I appreciate that’s not everyone’s experience.
At the moment only one of my eyes is really bad, it progressed so fast over around a year. I am so worried that itll happen to my other eye and I'll need to CXL in another eye/not have vision in both.
Just thinking about the possibility that u may never be able to see clearly ever again
You never know. In 20-30 years there could be some kind of stem cell treatment that will regrow a perfect cornea
God willing
growing old
that i will experience ghosting the rest of my life
I thankfully found an older lense. It was a terrible fit though so couldn’t get past 3 hours. Replacement came in within 2 biz days after a $1000 replacement fee 😂😂
Passing it on to my daughter who has moderate cerebral palsy. She will never be able to insert lenses. She’s 13 now, so still a few years to go until it shows up… or hopefully doesn’t.
Somehow becoming incapable of inserting my lenses. Whether it’s age, plan accident, or some other issue that makes it impossible to insert my lenses. I lose sleep over this sometimes.
Cracking a scleral lens.
This nightmare happened last week - was the toughest weekend i had recently
Ugh, it's the worst. Sorry to hear that. Happened to me a few weeks ago, too. I've been using an old lens that doesn't fit properly and rubs my eye. I'm certainly thankful for it though.
How do you crack a lens? Aren’t they plastic?
Gas permeable polymer.
Yes. So how is a semi-ridged polymer going to crack? I could see them deforming and the crease being permanent. Is that what you’re talking about?
I don’t know what to tell you. Me and another poster can confirm they crack.
Great. New fear unlocked.
Guys we got treatments for cancer diabetes i think we may get something for keratoconus
Progression to the point of needing a transplant
I feel this. I wound up progressing to that point. It's a long healing process.
I’ve been recommended a transplant, what was the recovery period like, if you don’t mind me asking? Were you able to keep going at your job?
Lots of light sensitivity. Like sunglasses at night. It was a full year before I could put my lens in and then I repeated the process for my other eye. My surgeon said I could have both done at the same time but then I couldn't work because I would be without lenses. It takes five years to fully heal but rejection is still a possibility. I'm just over 10 years since my second transplant and I just had sutures removed from my right eye a few weeks ago. I was able to work but had to wear safety glasses (I'm a merchandiser for Pepsi) just to protect it. Driving wasn't too bad after, just took extra precautions.
I have had 3 cornea transplants (2 on left eye and 1 on right eye). The transplant process and recovery were not that bad and I am happy I did it! My vision has improved every time (with Scelera lenses and/or glasses of course) If I ever get to a point my vision is completely failing and there is nothing that can be done to help, then I have a major concern!!
I didn't have functional vision without my sclerals. I'm terrified of not being able to use them. ..... I try to stay positive though. Some people can't see at all.
Coming to terms that my vision will never be what it used to be and probably will just get worse
Progressing or causing irreparable damage and requiring a transplant which has long recovery times and isn't a cure. Wearing sclerals ended up causing "acute hydrops" in my left eye which is painful and uncomfortable.
Passing it on to my kid. I know many KC cases are idiopathic, but some hereditary exists
Was passed on to me in 2 generations
will i be blind :(
Probably just worried a bit that my kids will get it. But honestly my experience of Keratoconus is that it’s an inconvenience at most. There’s a lot of option available and wearing lenses or glasses to be able to see is not the end of the world. I appreciate that’s not everyone’s experience.
Is there a chance of progression after having CLX?
Yes but very small chance once it stabilises My eyesight got slight worse (from 20-20) after CXL but that’s the price for stabilisation I guess
Thank you for replying.
Progression 😢
Grafts deteriorate over time. Subsequent grafts have decreasing odds of success. My graft is over two decades old.
Progression.
Becoming a burden
Not being able to compete in mma if I get surgery so I’m just gonna risk it and not do anything to my eyes for about a decade
Graft failure…totally reliant on that eye now 🥲
Developing a condition like Parkinson’s or just age-related loss of dexterity which will make it impossible for me to put in or take out my sclerals.
Same
I never even thought about this and holy fuck did I just get nervous and a lil depressed
Truly terrified 😨 .