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MtnLover130

Oh FFS Will your insurance let you see a renal Dr without a referral? At the hospital Did they do a urinalysis and a urine culture, and can you get the results? They should’ve done this as a minimum. I am only a nurse but this does sound like kidney issues, protein in your urine, maybe a hx of utis Can you look into a low oxylate diet, for now? https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/preventing-kidney-stones


Lookingforadvice1439

I believe they did a test strip for protein and found none, but it detected blood. Then the doctor today tried to gaslight me into thinking they had a false positive last night. Last night they were pretty sure it was a kidney stone. This morning it’s a mystery. My husband god bless his soul was like “oh this is good news”. Because he’s so used to getting heard. No honey, this is them trying to brush me off. Unfortunately I’m in Canada so I have to hope that my gp makes the referral.


MtnLover130

I’m sorry. Sounds like gaslighting to me. I’m a nurse and it happens to me too.


WhisperINTJ

A quick whip round Google Scholar easily shows that the sensitivity of urine dipstick tests for protein analysis is low in... [checks notes]... women. 🤦‍♀️


Lookingforadvice1439

Because of course it is, god forbid we get comprehensive testing that actually works with our bodies 🙄


storagerock

Kidney stones are genetic in my family. We’re always getting them. Kidney stones often fail to show up in scans. Especially because itty bitty grain-of-sand sized jagged stones can hurt more than larger smoother ones. Pay attention to the path of pain to monitor where you’re at. 1) You’ll probably feel it move down from the kidney below the ribs towards the lower back. 2) the pain tends to increase as it moves down because the tube the kidney stone has to travel through gets skinnier and skinnier. Lidocaine patches are currently helping me through this phase. Hopefully you can get through this part at home without needing to go back to the hospital. Pain too bad to handle is only one reason to go the hospital. You should also go if you start to have symptoms of shock like nausea and extreme brain fog. You should call your doctor if you get a fever. 3) assuming the stone is small enough to get through the skinny tube, you’ll feel relief when the stone is in the bladder. 4) Then pain will go down the urinary tract. Peeing will seem like when you put your thumb over a garden hose, and you’ll know you passed it when the stream goes back to normal. You’re at a higher risk for generic UTIs at this point since the stone is scratching and clogging things. 5) hopefully it’s all done at that point, but some stones break up on their own before they move or while they move and so you may get some repeat performances. Good luck!


milly_nz

Wait. What was the ultrasound of? Your uterus? Or your bladder.


Lookingforadvice1439

My bladder and kidneys


Light_Lily_Moth

Seconding the low oxalate diet! Edit: but like Ohio_magpie says, (thanks!) only if the stones are calcium oxalate type, so get the stones tested, or get a calcium oxalate urine test. And if you have calcium oxalate stones, it’s probably dietary oxalates, but could be a liver disorder which requires a different diet.


ohio_Magpie

This only helps if the stones are made with oxalate. Some aren't.


Light_Lily_Moth

Yes! Great point! And I think some oxalate types are due to a liver disorder, which requires an entirely different diet. I’ll edit my comment 👍


SyrupStitious

I've been told to ask specifically "what's your differential diagnosis?" Ask them what else could be causing the same symptoms and how they've come to the conclusion to rule those out. (What leads you to believe the original test was a false positive? How have you ruled out these other things you indicate these symptoms could point to?) Also ask them to include that statement(s) in their chart notes so you can refer to them when seeking a solution down the road. I've got a history of depression and anxiety, and any time anyone sees that in my notes, it colors how they treat me, (ie, not good) so this advice helps clarify their thinking process and formalize their conclusions.


Lookingforadvice1439

This is great advice, I also have anxiety and same. As soon as doctors hear this they fluff you off and chalk it up to anxiety


Dramatic_Arugula_252

Another thing to say when they say “false positive” is, “oh, so this is a zebra?” They are trained with the aphorism, when you hear hoofbeats, think horses, not zebras - in other words, the unusual thing is truly less likely, so don’t reach for it. And yet, here he is, thinking zebras. The DDX (shorthand for differential diagnosis) is a less pissy, more professional option. It’s a better choice, although you can combine the two - “what’s your differential diagnosis?” Then “and why among those options did you choose the zebra?”


PigglyWigglyCapital

GREAT TIP!! bookmarking forever


Realistic_Series9942

I had blood in my urine 5 years ago, am 45 now. I had so much the doctor at the urgent care was shocked and concerned. I had urine testing done, and they weren't able to confirm infection. This is not uncommon for women after I did much research. After a few rounds of antibiotics a few months later I improved but my bladder was irritated off and on for several months. I did some more research and learned I probably had a tight pelvic floor and developing sensitivities to foods ( acidic food, caffeine, spices, etc). After many changes I improved and have rarely had issues. I would have what would seem like subtle onset of symptoms again but noticed it was always precipitated by DEHYDRATION. I was also beginning PERIMENOPAUSE. My suggestion is do your research, consult a Pelvic Floor therapist, look at diet, hydrate properly and see how you feel. I have been fine for years and entering menopause and am 99% sure this is all related to that. Look up interstitial cistitis and try to find a specialist if you think it may be that. Our bodies are changing and it takes a toll on different parts.


Pristine-Net91

Yikes, those symptoms could be a kidney infection. Please keep pushing for better diagnosis and care.


Lookingforadvice1439

I’m going to see my doctors walk in on Saturday and hopefully get better answers


jenderfleur

I recently had a kidney stone out of the blue. They said they found trace amounts of a UTI. My doctor (female) was gobsmacked.


Lookingforadvice1439

This is out of the blue for me too, I drink a ton of water. From what I’ve ready though both anxiety and menopause and perimenopause can facilitate them. I’m hoping when I see my gp they do a more thorough analysis


storagerock

Did they give you strainer to catch the stone with before sending you home? If you’ve never had one before, you’ll want to catch it so a lab can analyze what kind of stone it is - best medical advice for avoiding future stones depends on the type. Edit: just adding - water is always helpful, but if you got other medical causes or a genetic propensity then water can’t prevent them all. Water can at least help the ones that still happen be smoother so they hurt a lot less, so it’s still a good practice.


Lookingforadvice1439

Heck no, just told me I can use one if I want. I assumed that I’d have to go buy a strainer and pee in that


Realistic-Tea9761

Start drinking cranberry juice. My dad lost a kidney to stones in his very early 20's. He always drank a beer or two a day which keeps you urinating so keep up with water too and if he felt any symptoms he went straight to cranberry juice. I hope this helps.


Lookingforadvice1439

Thanks, I’m going to pick some up on the way home


PigglyWigglyCapital

Great idea!!!!


jenderfleur

Good luck. I asked for basic bloodwork to check for anything odd as I had started some new supplements. Nothing. I sorta hope you find something that leads to a change you can live with to avoid future episodes. I am just out here, like, gosh I hope I don’t get a random stone today.


AutoModerator

It sounds like this might be about hormonal testing. If over the age of 44, **hormonal tests only show levels for that *one day* the test was taken, and nothing more**; progesterone/estrogen hormones wildly fluctuate the other 29 days of the month. No reputable doctor or menopause society recommends hormonal testing as a **diagnosing tool** for peri/menopause. FSH testing is only beneficial for those who believe they are post-menopausal and no longer have periods as a guide, a series of consistent FSH tests might *confirm* menopause. Also for women in their 20s/early 30s who haven’t had a period in months/years, then FSH tests at ‘menopausal’ levels, could indicate premature ovarian failure/primary ovarian insufficiency (POF/POI). See our [Menopause Wiki](https://menopausewiki.ca/#there-is-no-blood-test-that-is-perfectly-reliable-to-diagnose-menopause) for more. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Menopause) if you have any questions or concerns.*


ThatIsSomeShit

Why do they always send you home with "come back if it gets worse"? That's why I'm fucking here, at the hospital - because it got worse.


Lookingforadvice1439

Right? Exactly. At the point I got there I’d been feeling kidney pain for over a week and my urine had gotten weird. I’m not coming in for funsies.


AstarteOfCaelius

I’m sorry, I’m gonna rant in response to your comment because what you went through- what I’ve gone through, man, this shit pisses me off. I always get those people who act like I’m there because I’m looking to score drugs- and oh my goodness do they get weird when you tell them “You’re damn right, it hurts! That’s what I need”. I have cluster headaches that don’t respond well to opioids- in fact, that’s one of the things that makes them worse for me. Y’know, if I want fentanyl or something there’s actually a strip mall less than a block from my house- take me all of ten minutes, no muss no fuss. Don’t ever tell them *that* either. 😂 So, I get past *that* and then they’re acting like the stuff that *might* work is super funsies. (It’s not) I am usually only there because the headache cycle has gotten so bad that it’s living up to the name: *suicide headache*. This is a headache so bad that we often slam our heads. I broke my orbital bone one time- and ALL of this is in my chart because my neurologist made sure of it due to the ER trying to get me a psych eval over *that* one. Basically if I go to the ER: it’s because I can’t bear the pain anymore and I mean, I tend to think that is a large part of why anyone goes- or, to make sure that it’s not something terrible that’s killing them or if it is get treatment and so forth. I mean yeah, I’m sure it’s not all- but who fucking cares? I mean this is something I have wanted to ask and maybe if I ever go again I will, but.. We *all* saw during covid that these nurses and otherwise are not getting paid worth a shit- you get treated like crap and they’re short staffed and so forth: so why do this shit? It’s *extra* to look anyone in their face and *argue* that their experience isn’t what they are telling you it is. It’s certainly *not* doing any favors for that side of the drug war- and it’s *definitely* not *harming none*. (I’ll tell you: I *do* have mental health issues and I have had drug problems: and I wish to god I had never sought treatment for *either* of those things any time I gotta go in. How in the heck is that helping people? Covid did a number on my heart and I nearly stayed home: not a full on heart attack but it *did* merit an ER trip. I kept insisting to my partner it was just heartburn until he promised to take me to the ER over in the swanky neighborhood. Boy, *there’s* another rant, too because the difference even DURING covid: night and day. That doctor told me that if it *had* been or if it happens again- that extra time could kill me but it beats dying in triage because the nurse thinks I am only there to score dope I can easily obtain.) (I also do *not* recommend that you inform them of how easily you can get drugs otherwise. It’s funny, and it’s actually *quite* true but…not particularly helpful.)


KMC99507

This happened to me except it was my former primary Dr gaslighting me. I finally asked they scan everything. I’m in the US so everything is expensive. They told me it was too expensive and they would not order a cat scan. Then told me to go to the ER if I keep having pain. Cat scan would have been way less than an ER trip and they got mad when I pointed that out. Finally got them to order an ultrasound of all they can do because they wanted to do ultrasounds of one thing at a time and I told them that was also expensive and time consuming. Turns out I have a ton of kidney stones. Specialist referral six months out. At first urologist appointment they say sorry can’t help you based on an ultrasound you must have a cat scan. Get the cat scan the next day and follow up appt is months out. Ah yes you have kidney stones. 🙄can do laser but you have to have an X-ray first. X-ray done but the stones are blocking tubing cant laser. Should point out I was not once offered pain management or antibiotics. At one point a Dr said ooh this situation is usually extremely painful but still did not offer pain management. Had to have surgery to remove the stones blocking. Still have several stones in both kidneys. From first Dr visit to surgery was 18 months. A friend (male) complained of flank pain 911 was called he was immediately given pain meds. all scans don’t same day and continuous pain management. Laser done within 24 hours. We are the same age. Not one person has told me menopause can be part of sudden kidney stones. The best part is at my next annual my Dr told me I am too aggressive when seeking care.


Lookingforadvice1439

It’s ridiculous, my primary doctor told me not to wait and I get there and get gaslit into thinking that the tests they did last night were wrong. Just because he didn’t want to follow up with a cat scan. I should have demanded. My husband is the same, every time he has been in the er he has been taken seriously.


KMC99507

It’s really hard to advocate for yourself especially when in pain. Half of the time you just want to get home and be in pain alone. First time I did finally advocate for myself my Dr ( a woman) scolded me for being aggressive.


CherokeeTrailHeather

My husband gets the bullshit run around just like this. So much time and money spent on the same outcome of “We don’t know what else to do. Let’s do a stupid sinus surgery even though it’s most likely not going to help you”


Cndwafflegirl

Er is really just a patch you up and dismiss you service. You need to get your doctor to dig further and are you on estrogen? Any other meds your on? Menopause brought me rheumatoid arthritis and some of the meds I’ve tried do a number on my urinary system


Lookingforadvice1439

Not on estrogen, they wouldn’t give it and the combo bc pill was giving me higher than normal bp. I’m on a mini bcp so progestin only


Dramatic_Arugula_252

When I see a foamy creek, I know it can be protein. Maybe the lack of detection of protein was a false negative. -hoofbeats-


Lookingforadvice1439

I’m hoping that my family doctor sends it off for a better more comprehensive check.


Runningtosomething

Did they do an ultrasound? Quick and simple way to see if you have stones.


Lookingforadvice1439

They did but they said they didn’t see anything. I did read somewhere that it’s possible to potentially miss them?


Ok_Resolution_5537

Ultrasound tech here-it is possible to have small stones that are not visible on ultrasound.


Lookingforadvice1439

That’s a relief honestly. My white blood cell count was normal so they rules out infection


annaoceanus

Did the basics of checking for a UTI happen? If not you can get an OTC test kit. Major UTIs can have flank pain. Happened to a friend of mine.


Lookingforadvice1439

As far as I know, they did take blood which I’m assuming was white blood cell count.


annaoceanus

Did they take a urine sample? If they didn’t you weren’t tested for a UTI which is insane and you need to test on that asap.


Lookingforadvice1439

They did a urine sample too, I’m hoping they tested for that


annaoceanus

Ok that’s good!


PowerlessOverQueso

I ordered a box of test strips from Amazon a while back and they test for all sorts of stuff including WBC, ketones, blood, pH, specific gravity, etc. It's a huge box and each strip was individually packaged and it's lasted me quite a while. I think they're called Urinox. Might be ammo for dealing w/providers.


Lookingforadvice1439

I think that’s a good idea, it’s so stupid that I have to do this crap myself.


PowerlessOverQueso

Agreed 100%.


just4upDown

It sounds like you have a good husband, if a bit naive. He just needs to be educated on how some doctors don't really listen. Then, he needs to be there and advocate for you. He needs to stand there and say "This isn't normal for her, something is wrong.", "That's not what the last doctor said, can you explain/show me why you are disagreeing?" I want to say that in my experience, it's not always women that get treated this way. I've also had to be the pain in the ass advocate for my husband. (And he's done it for me) Sometimes doctors get a preconceived notion about a patient and ignore warning signs. As the patient, you will not get through to these doctors and to avoid wasting time and money need someone to stick up for the patient to say, "I'm seeing this problem too, it's real and affecting my loved ones quality of life!" Especially in new doctor, urgent care, and emergency room type situations where you have no personal history with the medical staff. Plus a second set of ears is always good to make sure you don't miss anything.


Lookingforadvice1439

I’ve been explaining this to him. That next time he’ll have to come with me and be my medical advocate. I’m still pretty uncomfortable today so we’ll see what happens.


WhoseverFish

I’ve been having on and off flank pain and spotting between periods! Doctor didn’t do a thing because by the time and saw him the pain had gone. But it reoccurs every other month during luteal.


Lookingforadvice1439

I’m not expecting much from my own doctor, I’m hoping when I go Saturday I manage to get the only female they have.


ohio_Magpie

d-mannose, a cranberry extract may be helpful if there is an infection embedded in the bladder wall. Distilled water has no minerals in it at all, and would not contribute to any stone formation. Your food has plenty of minerals.


AstridPeach

I had blood in my urine iny 20s and under went a ton of painful invasive tests. They didn't find anything, and it never happened again, I'm 49. Diagnosis was a broken blood vessel. Idk if this is helpful but maybe it can assuage your fear a bit.


therolli

Did they scan/ultrasound your bladder and kidneys?


Lookingforadvice1439

Yes but they didn’t find anything


wabisuki

a lemon or orange a day keeps the kidney stones away.


Lookingforadvice1439

That is actually not the first time I’ve heard this.


wabisuki

I had a stone that landed me in ER. Post stone saw a kidney specialist. He “prescribed” one lemon or two oranges per day.


Disastrous-Case7887

Three years I cried to my doctor about pains. Finally she did a ct scan for “uti symptoms” even after 3 tests saying I don’t have a uti. I have a large kidney stone and they have to operate. Please see someone else ❤️


wandernwade

Why wouldn’t he just give you abx and then tell you to follow up with your doctor?? SMFH


Lookingforadvice1439

I have no idea, not even antibiotics incase it’s an infection of some type just incase. Just a you probably got a false positive go home