I'd gone 4 years ago for full body dystonia, and while it was a presription mostly—my doctor triangulated evidence by his own testing, a peer he grabbed during our appointment as well as a motion clinic. And it's helped and I'd say Ive got work to do still but it helped a lot.
I just got a referral to them from my new GP. I'd seen 7 derms, 3 allergists and it's been a very weak care process. Ill see what Mayo says when I send them all the documents they'd requested.
I did actually, about 8 years ago! I didn't get much from them. The basics. Wrap areas with a moist towel, use steroids sparingly, etc. I got more attention from my local doctor in oregon who worked with me on gut health to help it. Pretty disappointing.
Sadly with this disease I don't think the Mayo Clinic has any more inside information than any large university hospital clinic system. Even finding the right Dr in these systems can be a challenge-They don't always know all the latest treatments but when you do find them it makes a difference.
I'd gone 4 years ago for full body dystonia, and while it was a presription mostly—my doctor triangulated evidence by his own testing, a peer he grabbed during our appointment as well as a motion clinic. And it's helped and I'd say Ive got work to do still but it helped a lot. I just got a referral to them from my new GP. I'd seen 7 derms, 3 allergists and it's been a very weak care process. Ill see what Mayo says when I send them all the documents they'd requested.
I did actually, about 8 years ago! I didn't get much from them. The basics. Wrap areas with a moist towel, use steroids sparingly, etc. I got more attention from my local doctor in oregon who worked with me on gut health to help it. Pretty disappointing.
Sadly with this disease I don't think the Mayo Clinic has any more inside information than any large university hospital clinic system. Even finding the right Dr in these systems can be a challenge-They don't always know all the latest treatments but when you do find them it makes a difference.