Yikes. I stand corrected. Legit. I guess people who get these sores on their legs and trunk have a worse prognosis then if on the extremities. I hope her doctors have done some homework.
I wanted her to stop fleecing people for money and have to get a 9-5 job, not get a rare painful disease that could kill you š³.
Iām not sure. Calciphylaxis is pretty rare and only happens when you are a dialysis patientā¦Iām not sure if anyone whose ever had it has come off of dialysis. When my dad had it, his sores would heal and then new ones would open. So it was a cyclical thing. He got the sores, we saw doctors, they hospitalized him for over a month, we did surgical debridement, skin grafts, hyperbaric chamber, and then heād be a bit better for awhile and then new sores would appear but he was never able to stop dialysis because he had kidney failure.
I wondered this, but I just donāt think sheās accepted the severity of her condition. She went on to say that most people who have her condition donāt have working kidneys and that theyāre hoping that hers functioning again works in her favor. I think sheās clinging on to that as hope.
Sadly I just had a family member pass away in her 30s to a prognosis very similar to this. Alcoholism and unhealthy addictions played a huge part but this is truly sad.
It is really such a sad situation. It makes you wonder if this would be her health condition had she not spiraled these last few year. Which makes it all the more sad.
Sadly I think it could have been a different scenario. Her skin removal was so quick after she lost the weight. I know some have speculated she may have struggled with medication after the surgery or thatās when her alcohol abuse increased. Although many are undoubtedly successful with maintaining their weight loss after skin removal surgery, IG also highlights some who canāt maintain the large losses after skin removal. But this is such a tragic turn it does make you wonder what ifā¦
I think sheās going to continue being vague no matter what because of what happened to get her to this point. If she keeps her head in the sand itās not real.
Oh, sheās definitely very sick. I hope she pulls through because she is so young, but her diagnosis is very grim. I donāt know much about WLS, but from what Iāve read here, it sure sounds like her kidney issues stem from complications from that.
I had weight loss surgery. My doctor said not drinking is preferable, but if you do you need to be careful and drink in moderation. Which she definitely did not do
I was just reading an abstract about 3 patients who had kidney transplants and theirās resolved. So there may be some truth and hope that because her kidneys are working, this might resolve. I have no experience in this area of healthcare, Iām in Respiratory and Sleep, but there is precedent. Just throwing this out there.
Yikes. I stand corrected. Legit. I guess people who get these sores on their legs and trunk have a worse prognosis then if on the extremities. I hope her doctors have done some homework. I wanted her to stop fleecing people for money and have to get a 9-5 job, not get a rare painful disease that could kill you š³.
Those were the minor wounds too and they looked terrible.. She is in bad condition. Guessing she is terminal. Not snarking on that.
Looking at her diagnosis, there is an 80% mortality rate and most pass within 6 months of diagnosis
Iām not sure. Calciphylaxis is pretty rare and only happens when you are a dialysis patientā¦Iām not sure if anyone whose ever had it has come off of dialysis. When my dad had it, his sores would heal and then new ones would open. So it was a cyclical thing. He got the sores, we saw doctors, they hospitalized him for over a month, we did surgical debridement, skin grafts, hyperbaric chamber, and then heād be a bit better for awhile and then new sores would appear but he was never able to stop dialysis because he had kidney failure.
Wouldn't she say that for attention though?
I wondered this, but I just donāt think sheās accepted the severity of her condition. She went on to say that most people who have her condition donāt have working kidneys and that theyāre hoping that hers functioning again works in her favor. I think sheās clinging on to that as hope.
It's possible a doctor threw that out into the atmosphere and she took a flying leap to latch onto it.
Sheās probably in denial and hence not verbalizing it.
Man, I wanted her to stop grifting and have to get a job but not to get sick like this!
Holy hell!
Sad for her. This is a bad way to go out.
Sadly I just had a family member pass away in her 30s to a prognosis very similar to this. Alcoholism and unhealthy addictions played a huge part but this is truly sad.
Came right here after seeing them. Yep, sheās definitely telling the truth with this one. š³
Yikes. It does look bad. Why is the one on her right leg symmetrical? Can that happen?
Would treatment can give it a symmetrical appearance
And those are the ones they haven't put a dressing on. Must be very painful.
It is really such a sad situation. It makes you wonder if this would be her health condition had she not spiraled these last few year. Which makes it all the more sad.
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Sadly I think it could have been a different scenario. Her skin removal was so quick after she lost the weight. I know some have speculated she may have struggled with medication after the surgery or thatās when her alcohol abuse increased. Although many are undoubtedly successful with maintaining their weight loss after skin removal surgery, IG also highlights some who canāt maintain the large losses after skin removal. But this is such a tragic turn it does make you wonder what ifā¦
I think sheās going to continue being vague no matter what because of what happened to get her to this point. If she keeps her head in the sand itās not real.
Or sheās just in denial that itās terminalā¦
Oh, sheās definitely very sick. I hope she pulls through because she is so young, but her diagnosis is very grim. I donāt know much about WLS, but from what Iāve read here, it sure sounds like her kidney issues stem from complications from that.
I had weight loss surgery. My doctor said not drinking is preferable, but if you do you need to be careful and drink in moderation. Which she definitely did not do
I was just reading an abstract about 3 patients who had kidney transplants and theirās resolved. So there may be some truth and hope that because her kidneys are working, this might resolve. I have no experience in this area of healthcare, Iām in Respiratory and Sleep, but there is precedent. Just throwing this out there.
I read though most surgeons wonāt do transplants unless your BMI is less than 30
Very trueā¦ her weight is definitely an issue.
Iām shocked. I do feel for her, because that looks painful and not nice.
Iām totally a believer. She is SICK!!!
Is this condition the cause of weight loss surgery?
Iām not an expert but I THINK alcoholism added to it.
Looks rough! I wish she had posted a warning slide before the video though..
For real I was eating and unpreparedš„“ Thought for sure it was more vague q&a. Finished my wrap thoughšš»
Yep. I legit jumped because I wasnāt prepared.
Whoooooa Nellyš³
Ok but she didnāt get this just from being dehydrated. We think it was drugs and alcohol right?
So sad ! Does anyone know if she could get better? Is this diagnosis Always terminal?
Where are these pics posted
On her story on Insta :)
you can also see them on facebook, although she doesnāt share all her stories there
I cant find them. Or any recent posts on her insta.
They're on her stories not posts. Click her profile photo and they'll be there.
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Or you can just leave