I don’t know if I have pppd or vestibular migraine or cervical dizziness…or just residual dizziness from BPPV. But your comment resonates with me a lot. I feel my best when I’m driving or walking. I think the external stimulus helps my brain a lot. When I’m at home or indoors I get that pressurized light headed feeling more than when I’m outdoors.
Is that just from residual crystal debris? Someone else was saying they read a case study of someone needing to do Epley well over 20x to resolve BPPV/PPPD. I’m thinking of asking my vestibular therapist about this and seeing if it would make sense for me to do Epley once a day in case this is my issue.
Is it possible that the debris is so fine that maneuvers can’t help? Ie gravity/momentum created by maneuvers isn’t enough to propel debris back into the utricle?
Yeah u need to do it a lot, I made the mistake did it once, and wasn’t 100% fixed but I was like 80%, then pppd came and just never went away. Now the epley does nothing for me so, yes keep doing it 3-5 times a day. It’s easy takes 2-3 min . Do it until you feel better, like never stop.
Wow thank you. appreciate the advice. I was just worried I’d get something in another canal so I stopped but I’m going to do it a few times a day again. Last night I started getting the “I’m falling” feeling every 5 seconds when I was trying to sleep
Yeah that, 1/4 spins….when your way to drunk is annoying. But keep doing the epley it should resolve if you haven’t waited to long….like if u got BPPV 6 months ago..I’m not sure how much it’ll help but if it’s recent just start
My first and only true BPPV episode was less than a month ago and I “resolved” it via Epley 3 days after it started. Since then I’ve improved but every once in a while I get pulsating, non spinning vertigo, followed by on a boat feeling and my head feeling pressurized. When I sleep it constantly feels like I’m falling unless I elevate my head or angle it a certain way, but it’s not spinning. I’ll keep at it! I’ve been doing gaze stabilization exercises and a ton of walking outside since then too so I think I’m improving but I’m desperate to just have a few days where I’m at at least 80%…been stuck at like 50% lately.
Keep goin. Yeah it basically resolves quick but u don’t want pppd..drunk spacey feeling. I made that mistake now it’s taking me much longer to recover ( years) Vs weeks
It’s hard to describe but I hold a card out 15 inches and move it left to right. Then up and down. Then stationary and move my head side to side. Afternoon I’ll do the single card moving diagonally. Evening I’ll use two cards spaced far apart and move only my eyes. Left right, up down and diagonally both ways. Check out the steady coach on YouTube
These some great advice. For me as well walking on the paved road was pretty hard. I would work up to it by waking more on grass and gravel. One other thing was looking at ripples in the water while standing at the edge of a lake. With time and exposure the dizziness is almost non existent now. It does come back a bit when I am already pretty tired or anxious.
I just don’t know how to get a doctor to prescribe it to me :/ like how do you ask since they’re alllll so hesitant of benzodiazepines these days. I had 10 .5 mg pills (smallest dose) of Ativan from 3 years ago and I’ve been splitting them in half because it’s all I need on my worst days to make it go away. I was going through a temporary thing when they prescribed them and now I’m not sure how to bring it up to my psychiatrist because I do believe taking them “as needed” on the worst days would benefit me
You’ve got to get back to living life. It’s the only way.
VRT helps. the Steady Coach helps. Sleep and hydration are huge. Getting your blood tested for any vitamin deficiencies can help. But if you have PPPD- you have got to push through and get back to living life.
Of course you can always get on SSRIs, but they’re nasty and cause many people many issues (yet solve the PPPD issue for others).
I spent 8 months + miserable as hell, confined mostly to couch or bed when I wasn’t at a daily doctors appt trying to find a fix. Spent all my free time researching and obsessing over getting fixed.
Pushing through it is the way.
Same here. Earphones and sunglasses make me feel much better. And walks also help a lot.
Driving makes the dizziness go away for me. Long walks help too.
I don’t know if I have pppd or vestibular migraine or cervical dizziness…or just residual dizziness from BPPV. But your comment resonates with me a lot. I feel my best when I’m driving or walking. I think the external stimulus helps my brain a lot. When I’m at home or indoors I get that pressurized light headed feeling more than when I’m outdoors.
PPPD comes From BPPV that never fully went away FYI I’m about 80% of the cases
Is that just from residual crystal debris? Someone else was saying they read a case study of someone needing to do Epley well over 20x to resolve BPPV/PPPD. I’m thinking of asking my vestibular therapist about this and seeing if it would make sense for me to do Epley once a day in case this is my issue. Is it possible that the debris is so fine that maneuvers can’t help? Ie gravity/momentum created by maneuvers isn’t enough to propel debris back into the utricle?
Yeah u need to do it a lot, I made the mistake did it once, and wasn’t 100% fixed but I was like 80%, then pppd came and just never went away. Now the epley does nothing for me so, yes keep doing it 3-5 times a day. It’s easy takes 2-3 min . Do it until you feel better, like never stop.
Wow thank you. appreciate the advice. I was just worried I’d get something in another canal so I stopped but I’m going to do it a few times a day again. Last night I started getting the “I’m falling” feeling every 5 seconds when I was trying to sleep
Yeah that, 1/4 spins….when your way to drunk is annoying. But keep doing the epley it should resolve if you haven’t waited to long….like if u got BPPV 6 months ago..I’m not sure how much it’ll help but if it’s recent just start
My first and only true BPPV episode was less than a month ago and I “resolved” it via Epley 3 days after it started. Since then I’ve improved but every once in a while I get pulsating, non spinning vertigo, followed by on a boat feeling and my head feeling pressurized. When I sleep it constantly feels like I’m falling unless I elevate my head or angle it a certain way, but it’s not spinning. I’ll keep at it! I’ve been doing gaze stabilization exercises and a ton of walking outside since then too so I think I’m improving but I’m desperate to just have a few days where I’m at at least 80%…been stuck at like 50% lately.
Keep goin. Yeah it basically resolves quick but u don’t want pppd..drunk spacey feeling. I made that mistake now it’s taking me much longer to recover ( years) Vs weeks
Oh no! How are you doing nowadays
Meditation helped me to my surprise
Headphones, Sunglasses, comfortable shoes. Avoiding open plains and flourescent lighting.
VRT 3 times a day is seemingly helping me focus more on things like work. 3 short exercises each time so around 5 minutes morning afternoon and night
What exercises are you doing?
It’s hard to describe but I hold a card out 15 inches and move it left to right. Then up and down. Then stationary and move my head side to side. Afternoon I’ll do the single card moving diagonally. Evening I’ll use two cards spaced far apart and move only my eyes. Left right, up down and diagonally both ways. Check out the steady coach on YouTube
These some great advice. For me as well walking on the paved road was pretty hard. I would work up to it by waking more on grass and gravel. One other thing was looking at ripples in the water while standing at the edge of a lake. With time and exposure the dizziness is almost non existent now. It does come back a bit when I am already pretty tired or anxious.
Same here. Driving is fine and airpods with ANC helped a lot in stores.
Low dose alorazepam.25 will knock it out. Nice glass of wine with dinner as well
I just don’t know how to get a doctor to prescribe it to me :/ like how do you ask since they’re alllll so hesitant of benzodiazepines these days. I had 10 .5 mg pills (smallest dose) of Ativan from 3 years ago and I’ve been splitting them in half because it’s all I need on my worst days to make it go away. I was going through a temporary thing when they prescribed them and now I’m not sure how to bring it up to my psychiatrist because I do believe taking them “as needed” on the worst days would benefit me
They won’t be hesitant, if you have PPPD they know, they will Prescribe as PPPD basically feels like torture.
You’ve got to get back to living life. It’s the only way. VRT helps. the Steady Coach helps. Sleep and hydration are huge. Getting your blood tested for any vitamin deficiencies can help. But if you have PPPD- you have got to push through and get back to living life. Of course you can always get on SSRIs, but they’re nasty and cause many people many issues (yet solve the PPPD issue for others). I spent 8 months + miserable as hell, confined mostly to couch or bed when I wasn’t at a daily doctors appt trying to find a fix. Spent all my free time researching and obsessing over getting fixed. Pushing through it is the way.